Member-only story

Living with the Suicide Disease

Nisha Kumar Kulkarni
7 min readAug 26, 2019

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Being diagnosed with trigeminal neuralgia and how the so-called “suicide disease” has changed my life.

Photo by Luis Galvez on Unsplash

THE NIGHT THAT CHANGED EVERYTHING

August 10th, 2017 was an ordinary summer day. It was close to 11pm when I started getting ready for bed. As I did every night, I brushed my teeth, washed my face, and massaged lotions and potions into my skin. I felt tired but otherwise fine. My hubby wasn’t yet home when I slipped between the cool bedsheets.

Within minutes of tucking myself in, I was thunderstruck by a pain like no other on the left side of my face.

I could only feel myself think for a split second.

Was something wrong with my teeth?

Was this some new cruel iteration of my migraines?

But this pain went beyond any of that. I reached for my migraine medication — high-dose, prescription Naproxen — and took one, praying this pain would dissolve, then curled up into fetal position and sobbed.

When my hubby finally came to bed, I turned to him and cried, “It hurts so much and I don’t know what to do.

So I did the only thing I could: I called my parents. My father is a doctor and my mother is a nurse, so this was exactly one of those moments when I was grateful to live…

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Nisha Kumar Kulkarni
Nisha Kumar Kulkarni

Written by Nisha Kumar Kulkarni

freelance writer & editor | writing coach | chronic illness advocate

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