Money and Chronic Illness

Nisha Kumar Kulkarni
6 min readNov 2, 2020

Chronic illness seriously complicates the role money plays in our lives.

Photo by Raychan on Unsplash

In my July post, “Reimagine Work,” I wrote the following:

“A 2019 study noted that approximately 530,000 bankruptcies are filed annually in the U.S. because of “debt accrued due to a medical illness.” That is almost 4% of the U.S. chronic illness population.”

It is no secret that people in the U.S. are crushed by gargantuan healthcare costs. Knowing these costs — even if you are fortunate to have insurance — makes people think twice about dialing 9–1–1 for an ambulance or scheduling a doctor’s appointment when a new symptom emerges. These decisions are amplified when you have a chronic illness and need more consistent care to maintain a functional standard of living or, in some cases, life-saving treatment.

That’s why the subject of affordability is only a thread in the larger conversation that needs to be had about money and the uncertainty of chronic illness.

A hard pill to swallow

Since my diagnosis in 2017, I have spent a lot of time thinking about how easily chronic illness can bankrupt a person. Every time I review my doctor or pharmacy receipts, I can see what the total, uncensored price of treatment would be without insurance, and I’m left dumbfounded.

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Nisha Kumar Kulkarni

freelance writer & editor | writing coach | chronic illness advocate