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Does My Chronic Illness Define Me?

Nisha Kumar Kulkarni
5 min readNov 16, 2020

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Finally coming to terms with what it means to be defined by illness and the dangers of false equivalence.

Last week, I read this quote on This Thing They Call Recovery’s Instagram page:

“I am defined and limited by my chronic illness, but it is not the total sum of who I am.”

I understand what it means to be limited by my chronic illness: I am outspoken about learning how to work within your limitations to live a full life beyond illness.

But until reading this quote, I didn’t immediately understand what it means to be defined by my chronic illness and how that is separate from recognizing that it isn’t the totality of who I am.

Am I making the effort?

I have written about how chronic illness isn’t the center of my life, but that it does affect every single part of my life. That is a reality that I’ve had to make peace with. It is something I consistently remind myself of, especially since so much of my oeuvre involves writing about life with chronic illness.

I have found a new voice and purpose through my diagnosis, and that is the so-called silver lining I choose to pay the most attention to when I think about how my life has changed over the past three years.

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Nisha Kumar Kulkarni
Nisha Kumar Kulkarni

Written by Nisha Kumar Kulkarni

freelance writer & editor | writing coach | chronic illness advocate

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